Membership is open and free. Observe, contribute, lead, or start something new, at your own pace.
Join the IDSWG
Ways to Participate
Observe
Join the mailing list, attend KOL webinars, and follow sub-team activities with no commitment required.
Contribute
Co-author papers, review manuscripts, present at webinars, or bring expertise to a specific project.
Lead
Take on a sub-team leadership role. The Leadership Team provides mentorship and support for new leads.
Start Something New
Prepare a one-page concept and meet with the leadership team to discuss scope, fit, and support for a new sub-team.
Open Positions & Active Recruitment
- Master Protocol Regulatory Sub-team, Volunteers for the 2020–2025 Systematic Literature Review update (full-text review, data extraction). Contact Peter Mesenbrink or Julia Niewczas.
- Patient Engagement Sub-team, Seeking a new sub-team leader to champion the integration of patient perspectives into innovative trial design. Open to patient advocates, clinical researchers, and methodologists with a patient-centered focus. Contact Mercedeh Ghadessi.
- Concept, Methodology and Framework Sub-team (MPWG), Undergoing a reboot under Bryan McComb and Courtney Henry. New members welcome. Contact either directly.
- Patient advocates and patient organizations, The IDSWG specifically welcomes patient advocates as full members. If your organization works in rare diseases or another area where the group is active, we’d like to hear from you.
Contact the Leadership Team
All inquiries are handled through the group’s shared inbox. Whether you want to join a sub-team, propose a collaboration, or ask a question, email us and your message will reach the right people.
General inquiries and sub-team interest:
asadahshuidswg@gmail.comThe IDSWG leadership team:
| Role | Name | Organization |
|---|---|---|
| Chair | Robert A. Beckman, M.D. | Georgetown University |
| Vice Chair & Leader of Community | Mercedeh Ghadessi, M.Sc. | Bayer |
| Vice Chair & Leader of External Collaborations | Alex Sverdlov, Ph.D. | Novartis |
| Co-Leader of Community | Courtney Henry, Ph.D. | GSK |
| Co-Leader of External Collaborations (Non-EU) | Bryan McComb, Ph.D. | Pfizer |
| Co-Leader of External Collaborations (EU) | Johannes Krisam, Ph.D. | Boehringer Ingelheim |
Stay Connected
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